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Only over time do parents and relatives develop an awareness of what autism actually is. This does not mean the clinical diagnosis, which is certainly important, or strategies for therapeutic intervention. Rather, it is the awareness of how autism changes the everyday life and the life of those affected and how the “being different” of one’s own child challenges one to question one’s thinking and one’s actions. It is ultimately about understanding what exactly the challenges are. What do you actually want to achieve as a parent or relative? Is it about my child behaving in accordance with my requirements, or is it about living well and harmoniously together as a family, so that everyone has their place? And what positive influence can one have on the advancement and independence of one’s own child? For many, all this, the many questions, the challenge and the everyday life is quite exhausting. In toddlerhood, your own child initially behaves completely differently from other children and this makes everyday family life, the effort required for everyday things, the constant adapting, the perceived isolation and, and, and…. very difficult for the family. With the diagnosis it becomes clear that everyday life will always be different. At first, little advice from the outside can help. But maybe the exchange of experiences among autistic people, parents and relatives can help to find a way to lead a good life.
Within the framework of the self-help group, we would like to exchange ideas among parents, relatives and autistic people in joint discussions and develop needs-oriented action strategies for stressful situations in everyday life through the mutual exchange of experiences. Since there are always changes over the years, we regularly work out new solutions for new challenges. In addition to the exchange of ideas and experiences, the participants of our self-help group receive important information (access to counseling centers, therapy options and assistance) as well as the opportunity to participate in professional or action days. There are also joint activities with parents with and without their children.
We want to create a space for young, adolescent and adult autistic people where they can develop without bullying and prejudice. We want to achieve that they are accepted as they are – as all other people would like to be. They themselves and their parents/relatives advocate for this.
We can achieve the most for our families and beyond for others if we do not act as lone warriors. It takes a lot of strength to have to explain yourself to society beyond the private sphere. Surround yourself with people who are good for you and who can exchange experiences with you. And with whom you can do educational work together. As a participant in our group, you decide for yourself what you would like to share. All concerns and topics are treated confidentially.
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